A Sydney couple facing life without their newborn son asked a photographer to be a part of the family’s final moments together.

For six hours, the photographer sat on the floor and tried to make himself invisible.

He took hundreds of photographs of baby Edison that Nancy now looks at every morning before finding the courage to get herself out of bed.

“I have no words,” he tells the camera. “I received a phone call this morning from a couple saying their baby was dying and that I needed to be there with them to photograph those final moments.”